Alzheimer’s disease: From the Caregiver’s Point of View
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Alzheimer’s disease: From the Caregiver’s Point of View

December 13, 2023

“I keep staring and hoping to find glimpses of the old you. I know you are still in there. I remember how life used to be and the memories we shared. I try to reminisce with you, but there are days where you cannot recollect these moments. Sometimes, you do not even remember who I am. But I will always be here for you and with you.”

Watching your loved one fade away before your eyes can be draining both physically and emotionally. Gather a team of caregivers for an action plan and support. Siblings, spouses, and extended family can set up a schedule to relieve some of the extra responsibilities that will arise. Day and night shift schedules can work or alternating monthly care can also work. It can be hard to come to a consensus about care when multiple caregivers are involved. However, focus on the safety and personal care of the patient first. There may be issues with mobility, which can lead to trouble bathing or changing, falling or wandering, and swallowing or communication.

Consider proximity to the patient or other caregivers as well. Can the patient move in with you or near you? This will help with time efficiency and patient observation. Switching homes between caregivers can be beneficial in splitting the care and love needed if the patient feels comfortable.

Management of care can be difficult while maintaining a career or family. Ask for flexibility to work from home during this time. A sitter can do activities with the patient while you work. Keeping the patient awake and active during the day will provide more restful nights. Make meals ahead of time on the weekends. Distribute responsibilities within the family. Kids can get involved too.

Expenses can increase during this time. Discussing such matters may seem inappropriate, but the majority of individuals over 65 years of age need some kind of care. Look to the following for assistance:

  • Medicaid (according to AARP, Medicaid differs from state to state, and applications may need to be resubmitted
  • Medicare
  • Life insurance or long-term insurance.
  • Social security benefits, and
  • Tax deductions for help. Consult an accountant for more information.

There are many care options available depending on needs and financial capability.

  • Home Health Care agencies, like Brightstar Care of Hudson/Solon can provide quality care in the comfort of your home.
  • Nursing Facilities are usually long-term in a medical environment.
  • Assisted Living can provide some assistance while the patient stays independent. Meals, cleaning, and activities can be included in this option.
  • Respite Care comes in to provide caregivers with a temporary break.